Most parents have never heard of silent reflux in babies, and infants might not get the help they need. This mom’s story of discovering silent reflux in her baby and overcoming it will inspire and encourage you!
Sarah from Frugal Fun for Boys is here to share her powerful story about silent reflux in babies. She is a homeschooling mom to five and a violin teacher. Two of her little guys experienced acid reflux as babies. She is sharing their journey in discovering silent reflux, diagnosis, and treatment of the symptoms. Reflux affects many babies and children, which can have a huge impact on how and what they eat. Sarah has more posts about reflux over on her blog.
In the spring of 2009, I was expecting my third son, Owen. As a veteran mom, I figured that I pretty much knew what to expect. My first two boys were terrible at nursing at first, but we worked through those challenges, and they both went on to be chubby babies who were good eaters and grew well. I expected that my third son would follow the same path.
Well, that wasn’t what happened.
Discovering the Big Secret: Acid Reflux in Babies!
I first suspected that something was wrong at about six weeks of age when Owen would begin nursing only to pull off, arch his back, and scream just a few minutes into the feeding. If I stopped the feeding and put him down, he was content and happy. If I tried to get him to finish nursing, he became very upset. I had no idea what could be wrong with Owen, and I assumed it must be a problem with nursing. We put off going to the pediatrician because my husband was out of work and we were uninsured at the time.
When Owen was 3 months old, my husband had a great new job and insurance coverage. We went to the doctor the first week that we had insurance! By this point, I was exclusively pumping and bottle feeding because it was very difficult to manage Owen’s “snacking” approach to eating with two other boys to care for as well. With the bottle, I could see better what was going on. I explained to our pediatrician that Owen would drink 1-2 oz. and then begin arching and crying. The pediatrician suspected silent reflux (meaning that the refluxed material does not come all the way up as spit-up), and sent us home with a prescription for Axid. He said that we should see a difference after a few days on the medicine if reflux was truly the cause of Owen’s feeding troubles.
We tried Axid, and it initially seemed to work, but a couple days later, Owen was back to arching and refusing his bottle. The doctor had us try Prevacid. It was very difficult to give, and Owen came down with a cold as soon as we started it, so that made us wonder if the Axid really had been helping and the poor eating was simply the result of the cold coming on. At four months, Owen began teething, and his eating was really affected. He rarely drank more than 1.5- 2 oz. at a time. At five months, Owen had an upper GI test done (normal results – did not show any reflux) and he spent a month on Axid with inconclusive results. At 6 months, we stopped the Axid, because according to our doctor, Owen was probably close to outgrowing his reflux.
Actually, he wasn’t close to outgrowing it at all!
When will the Silent Reflux in my baby End?
At 7 months, Owen was crying when we approached the chair where we fed him. Teething seemed to make his eating much worse, and he was constantly teething! Much of the time, he would not allow us to hold him while we fed him his bottle – he preferred to be in his bouncy seat. If anything remotely more interesting was going on, he would not eat. He would not eat solid foods, and honestly, getting him started on solids was the least of our concerns! Also, most of his milk intake was in a sleepy state before his naps. If either of his brothers interrupted us, the feeding was over! He stopped nursing completely at 4 months, so I was pumping full time while also teaching part-time at a private school, and homeschooling a 6-year-old and a 3-year-old. When I look back at the stress of that time in our lives, I realize that it was only God’s grace that got us through! Even now, I am amazed at the strong feelings of stress that wash over me when I think about that stage. There’s nothing quite like wondering if your child is starving himself.
One night, I posted my desperation on facebook, and a friend put us in touch with a feeding specialist that she knew. (Read more about how to begin feeding therapy.) She was an incredible source of encouragement and information! First of all, she assured us that this sounded like classic reflux. She gave us some tips for dealing with the reflux, such as elevating the end of his crib mattress and moving him out of his infant car seat and into a convertible seat. Because we could not “see” any of Owen’s symptoms, it was helpful to have someone assure us that reflux was his problem and that simple positioning tricks would help reduce the reflux. Owen was hoarse from the acid by this time, so we started him on Axid again at a higher dose, and Owen seemed more comfortable drinking his bottles within 48 hours! The feeding specialist also recommended that Owen see a dietician, and we eventually saw a GI specialist as well.
Owen’s reflux was ugly. And he didn’t outgrow it at 6 months, or a year, or even 18 months. But he DID outgrow it!
Where are we now? Well, Owen is 3.5 years old and enjoys eating and snacking! Because of the feeding aversions that he developed, he did not begin to eat solid foods in any sort of reasonable quantity until he was 18 months old. He drank high calorie formula for most of his nutrition until 18 months, and didn’t give up formula completely until 2 and a half. But we made it! The formula and bottles are finally a thing of the past, and Owen loves to eat fruits, veggies (he loves carrots and broccoli), most meats, peanut butter on crackers or apples, and cheese. He had a dairy sensitivity, which he has outgrown. He has been off his medicine since age 2.
Sanity Saving Tips For Acid Reflux in Babies
- Silent reflux is hard to diagnose because the baby is not spitting up! We did not know for sure that Owen had reflux until he had a pH probe test at 10 months old. Some signs to watch for are crying and arching during feedings, screaming after feedings, frequent sour burps, and hoarseness from the acid.
- Choking during feedings can also be a sign of silent reflux. When our fourth son was born in January 2012, I noticed that he was sure choking a lot during his feedings! I called our feeding specialist, and she said that getting choked up more than once a day is not normal. We had a swallow study done at 6 weeks of age, and Jonathan’s swallowing was just fine. But guess what the test revealed… reflux! He was having a “traffic jam” in his esophagus. Milk was trying to come back up while he was still eating. (However, Jonathan’s reflux journey was much less severe! He is 10 months old, and has always been a good eater.) Find more silent reflux symptoms here.
- Reflux medicine does not stop the reflux. It does, however, make the reflux less acidic so that it will not burn and cause damage. If you’re interested in other holistic alternatives click here for more info.
- Many breastfed babies with reflux also have a food sensitivity to dairy or soy, so it may be worth it to eliminate those from your diet. Owen responded really well to a hypoallergenic formula (Alimentum) at 10 months of age. I wish that I had tried a dairy elimination diet for me when he was still nursing because it obviously would have helped.
- If you feel that something is wrong, don’t be afraid to keep pursuing it, even if your pediatrician thinks there is not a problem! Our pediatrician was not concerned because Owen’s weight was in the 10th percentile at birth, and he hovered between the 3rd and 10th after that. He was growing along on his own growth curve. However, I saw what was happening at home – the refusing bottles, the never crying for a bottle, and the refusing to eat solid food. We saw a GI specialist on our own, and Owen had an EGD test done. The scope of his esophagus and stomach revealed gastritis – an inflammation of the stomach lining. A 6 week course of Nexium helped Owen quite a bit, and we would never have found that if we hadn’t gone to the GI doctor!
- On the other hand, do your best to resolve any pain issues so that they aren’t afraid to eat, but then relax about your child’s growth. We were concerned about Owen’s slow growth, but he now eats relatively well, and is still very small for his age! Our fourth son, Jonathan, grew like a weed despite his reflux. He choked during feedings until he was 5 months old, and yet managed to hold his own at the 50-60th percentile for weight. I think that genetic differences, not reflux, has been the bigger factor in the different growth patterns of my two sons with reflux.
Infant reflux can really affect life for both baby and parents! If you need more help, consider contacting a feeding therapist that specializes is silent reflux in babies. You can find one through early intervention, free if you live in the states, or privately.
Have something that helped your baby with silent reflux? Share it in the comments below!
Sarah Dees is a homeschooling mom to four boys ages 9, 6, 3, and 10 months. She blogs about inexpensive and easy activities to keep boys busy and learning new things at Frugal Fun for Boys.
More on Acid Reflux in Babies
What to Do When Baby Won’t Eat Solids: 7 Simple Steps
5 Reasons Kids (and Babies) Refuse to Eat
A Hidden Cause of Picky Eating: Acid Reflux
The Ultimate Guide to Feeding Milestones for Babies and Toddlers
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Alisha Grogan is a licensed occupational therapist and founder of Your Kid’s Table. She has over 15 years experience with expertise in sensory processing and feeding development in babies, toddlers, and children. Alisha also has 3 boys of her own at home. Learn more about her here.
Mu daughter had reflux fron 4 weeks until about 2.5 Years old. We found out at about a year or a year and half old that she had a dairy allergy.
She is 3 in about 3 months and is starting to show sign of reflux again. Im not sure if it is just a cough/cold but it just seem alot worse at night when she is laying down and it seems alot like reflux days. Days I really dont want to revisit. No sleep, ever. Having to hold her up right all the time, screaming in pain whenever I put her down, and crying alot of the time even when I held her. She very rarely slept and still doesnt sleep through the night now.
I just want to know if I am just being paranoid or something? Or if silent reflux can come back in a nearly 3 year old. X x
Oh reflux can be so challenging for families. We’d suggest reaching out to your daughter’s doctor about your concerns. While it doesn’t always, reflux definitely is something that can pop up again after infant years.
Thank you so much for sharing this. I have twins and one of them I couldn’t figure out what the problem was. As I read this article, I felt like I was reading about one of my sons. Thank you… thank you.. thank you!
You are sooo welcome Camille, We are glad we can help direct you to find some answers 🙂
My baby is 7 months old up until now he was spitting up a lot, after meds he has done better but still can only take 4 oz at a time every few hours and if he gets to.much it is as if he chokes on his spit up but it doesnt come up like it use to it seems to get stuck im so scared he is not going to be able to clear it one day and choke and i am on edge all the time! GI doc doesnt seem to worry about it but i believe it is serious!
My son who is now 1 year old had a terrible acid reflux. The first 2 months were terrible because he cried all the time. While feeding him he would be fuzzy and after feeding him he would arch his back and cry and cry !! We tried everything under the sun. Gave him mylanta before every feeding, famotidine, feed him in an upright position only, elevated his mattress, burped him, pumped before and after every feeding so I could keep feeding him just because he would only eat 2 oz at a time. He associated feeding with pain. He went from the 25% to 2% tile! I saw 3 pediatricians, multiple lactation consultants, 2 gastroenterologist and a feeding specialist throughout our journey and nothing really changed that much until he turned 6 months and was able to sit up straight! The acid went away but not the reflux! meaning that eating was no longer painful but now our struggles were different. His body couldn’t take more than 3 oz at a time, he would eat maybe a tbsp of solids per feeding, we had to be super patient and try different foods and textures and have fun during every single feeding to get him to eat more. He had a very sensitive gagging reflux so he would project throw up with the smallest piece of food or if he ever eat more than 5 ounces. At 9 months I stopped breastfeeding completely because we needed to know how much was he eating exactly and realized he was getting 18-22 oz in good days. I started pumping only and lost my milk so we started formula which was great ! Slowly and slowly we got him to eat a little more every day. He now would take 28-30 oz of milk a day but barely ate any solids. He would throw up 3-4 times a week, always after dinner time and he wasn’t really chewing much and before seeing the gastroenterologist again he finally turned the corner !!! OMG it happened over night at 1 year old and one week old and now he eats so much better. Eats full pieces of raspberries, blackberries (with the skin 🙌🏽), cheese, almost a full yogurt, pasta…. and so on.
I didnt have time to read through everyone else so comments but we found our babies problem. It was her hyoid cartilage was pulled up in her throat and making her feel as if she was choking. She had Most of these sameness symptoms. We noticed the eating issues when she was 2-4 weeks. She would scream and flail at breast and bottle. Sometimes she would bite the nipple and shake back and forth(bonus). Often times once she was starving she’d drink ‘just enough’ and then scream again. All of our online research led us to stomach issues like reflux so we went down that path with no relief. We would actually have to get her to fall asleep so that her suck reflux would take over. We saw chiropractors, physical therapists, a whole slew of lactation consultants and we were finally referred to a more holistic occupational therapist. She figured out this was the issue within 3 mins with a physical examination. She said it’s commin for babies that have gone through a fast vaginal delivery or a c-section because they don’t get the stimulation need for the nervous system to do what it needs to do. She said it puts these babies in a fight or flight state so they seem hyper alert and they tense up their muscles which causes them to pull their hyoid cartilage/bone into their throat. With therapy in her office and mild therapies at home she was 95% better within two months. We didn’t get to this point until she was 9 months or so. Hope this helps someone.
The therapists name is Mary Hooper in Madison WI.
Wow Christine, thank you so much for sharing! THIS will help somebody else, I’m so grateful you took the time to share.
my wife and i are going through episodes where my son would latch and unlatch and cry. sometimes he does choke after latching for less than 15 seconds and coughs and cries. we’re trying to teach him the bottle but he gets fussy and won’t take it after 20 minutes of trying. our pediatrician believes he has colic and we have to just plow through it. however he does sometimes arch his back as well when he cries and we have a feeling it could be silent reflux but our doctor keeps asking us if he throws up and he checks his percentile and he’s within range of course. due to his slow growth.. he doesn’t gain the standard weight that’s recommended and so my wife and I (primarily her) are worried if this is the case. his normal feeding time is usually between 6-9 minutes on one breast. we try to feed him longer but he pushes away. just not sure if it really is silent reflux because there are moments when he does cry after feeding… maybe twice a day and all our doctor is teling us is that he’s just gassy. we used the windie to help expel air out from his rectum and it mightve helped a little but we feel like there’s more to it than gas.
Yikes, okay, he definitely sounds like silent reflux is affecting him. I’d strongly suggest a second opinion. I know this can be a lot, hang in there!
My son shows the same symptoms.. And he is just turning 3 months this september. Can someone help me?
So sorry your little one is having trouble. If you are suspecting silent reflux based on this article, I’d reach out to get a referral for a GI doctor so that they can help look at your symptoms and help with suggestions as well!
Yes, my granddaughter had these same symptoms ….however there is new evidence from multiple professors that glyphosate may be the number one cause to multiple ailments seen in infants. Here is a video explaining how to combat some of these ailments
This sounds like my baby. Is Mary Hooper still practicing? We are so desperate to get our sweet baby to eat peacefully and reflux only meets some of the qualifications. I would love any insights you might have.
Thank you for sharing this story. My daughter experiences the exact same issues, and is now 6 months and being labeled “failure to thrive.” We have had everything checked. I’m curious with your comment because we can’t figure out what could be wrong, but she WAS born EXTREMELY fast – I went into labor extremely fast and within an hour she was born – and as a result formed a big lump on her head for the first several months of life that was due to fluid buildup/blood under her skin. She is fine with that now, but I always wonder if there was some kind of connection. What kind of therapy does this entail?
Thanks for reaching out, so sorry you are having trouble figuring out what is wrong. Typically in looking with feeding/food related it is occupational or speech therapy (depending on where you live). Since she is 6 months old you can look into Early intervention if you are in the US! You can read more about that and other feeding therapies HERE
Hi I am a first time mom, our baby boy is 31/2 months old; he did not latch and would refuse to take the breast for milk, on consultation with pediatrtion she said it was ok for baby to feed on bottle and so we completely shifted to formula, baby was colic and had trouble to digest so we did the usal gripe water and excecise, everything seemed to be fine until he started to roll over a week ago, he started to scream when put down, grunts but no Farts/ Poop ( sorry for the TMI), last few days have been worse as he has stopped drinking complete 3 oz and arches his back and Grunts and is in so much discomfort that he hardly sleeps during the day, there is no Spit up or any vomit, all he does it painful burps after a hour of drinking milk, after reading all comments I am worried and confused, as most mom’s hear rightly said that Doc always say its normal, how can it be? when I can see the baby suffer, please help me, any suggestions would be really helpuful. to add to it our doctor has suggested FAMotidine 0.4ml twice, hope this helps, also we give our baby Similac Pro advance. do you think its silent reflux/ any other. please help.
we understand how hard this can be. Yes, I’d continue to talk to your doctor about it. You can try to get a referral for a GI doctor as they may be able to recognize signs better and help you navigate through what is happening more!
Hi did they think she had colic too and did you notice symptoms right away Like days after being born? This maybe what my daughter is experiencing…
Hi! Was this condition called laryngomalacia ?
Christine, I know this is an old post but I’m having a similar issue w my 7 month old. What was the name of the diagnosis for your baby? Im looking for a holistic OT, any suggestions on who to ask for a referral?
I am sorry for your nursing struggles. Something else to keep in mind is that lip & tongue tie also cause similar symptoms (& can cause reflux for sure) to what you have experienced. Most doctors, peds, ents, dentists, etc are CLUELESS when it comes to what ties look like, the symptoms of them, etc. I had to keep seeking help to find relief for my kiddos. From my extensive research I found that I needed to have evaluations done by specially qualified practitioners who were specifically trained in lip & tongue ties. I already knew that my kiddos had them from looking at pix online but when they were evaluated the ties were even more severe that I realized because they had posterior ties that are very easily missed.
I see a lot of comments here from people & want to tell them to look into lip & tongue ties because they CAUSE reflux. Taking meds & using bottles may help, but they don’t take care of the actual CAUSE. I know my struggles with breastfeeding caused me & my baby a lot of stress and could have been taken care of with simple laser revisions by a qualified practitioner like my other kiddos had. You would be AMAZED at how many people are told ignorant things about ties by DOCTORS.. they tell parents that the ties will “loosen” which is CRAZY.. they may elongate later in life but will still be tight & there are no guarantees they will do that. They tell parents that the tie is mild in spite of the symptoms the babies are having. So much suffering & stress could be eliminated if parents knew what was the CAUSE of the issues & where to go for help. Not all babies have ties & clearly mama’s diet can cause reflux, but just wanted to share what my experience has been in the hopes it could help someone else & their baby.
Thanks so much for sharing your experience, it’s so helpful!
Hello, my baby has reflux and also her upper lip is a bit tied and our pediatrician said same thing that it can loosen when she will be a toddler and will fall or whatever and we are struggling with eating and trying medicine and chiropractor and nothing seems to help, after seeing your post it makes me wonder if her problem could be to her upper lip being tied, how does that make reflux though? I want to ask my pediatrician if we can fix it but you said there are specialist in that? I live in Clearwater FL, where do you live? My baby is 2 months old. Thank you
Hi. If the upper lip is tied it won’t let the baby latch on fully & correctly, so the baby gets a lot of air which causes reflux, gas, fussing, digestive issues, etc. Also, if there is a lip tie, quite often there is a tongue tie as well.. & some are posterior, which are kind of hidden unless you know how to look for one specifically & even then, they can be tricky.
Beware that most pediatricians are CLUELESS about lip and/or tongue and lip ties. My kids had OBVIOUS ties & it took ME telling our ped that I KNEW my kids had them, & not taking NO for an answer. I took them to a specialist who is trained specifically in ties & who revises ties with laser (the best way to do them). The provider I used charges a flat fee no matter how many ties they revise & they do NOT charge for any touch ups in the future if one is needed. Most providers by us charge PER tie, so if they say your child has 2 ties, you pay extra… so I had nothing to lose by trusting the provider we saw because they charged ONE price for BOTH ties. We drove 3 hours EACH way to bring babies/kids to them & have a few more kids (& my own tie) we plan to get revised. I am in IL.
If you go to this group they have a lot of info & I think they might be able to tell you how to find a LASER provider by you. Laser is MUCH safer & better than scissors or scalpel.
Lip & tongue ties will NOT loosen! The areas AROUND the ties may get longer as they get older/bigger, but a tie will always be a tie.
Here is a dentist in FL that does laser treatments. I don’t know anything about her, but here is a link:
A Google search for providers in your area:
I hope you find help ASAP! Do NOT give up! Keep pushing for ANSWERS for your child… do NOT just give meds, etc because they will NOT fix the issue if there is a lip and/or tongue tie.
Thanks for sharing your story. What type of doctor do we look into for the tongue tie? I keep hearing all the things you mention below about my little ones tongue tie. And she is for sure experiencing silent reflux. 🙁 If be happy to find a specialist. Would it be an infant GI specialist? Thx!!
I’d try to make sure you are looking for a professional with experience so make sure to call and ask specifically. I’d look into pediatric dentists and pediatric ENTs. Each of those have the qualifications 🙂
Best of Luck!
My son, 3 months old, does the arching back, screaming, only taking a couple oz maybe once or twice a day for the past couple weeks. Does that sound like reflux to you? He didn’t always do that.
It does, I’d check with your doctor:)
Since birth my lo does not feed properly. I consulted many lactation specialists thinking it was latch problem but nothing worked. My lo completed 3 months now. He does not drink milk while awake. I breastfeed him when he is sleeping hardly 6 times in 24 hrs and that too he will take only for 5mins or so in sleep. He doesn’t take bottle too. After trying for 1hr he would take 1/2 or 1 ounce only that too once in a day. He is in general active, plays well and has just started rolling since yesterday. He used to sleep well at night but since past 1 week starts crying in sleep and then wakes up crying. And from couple of days he is arching his back when I try to breastfeed him while awake. He does not vomit and passes urine around 7-9 times a day. Does it seem like reflux? Is there any formula I can try apart from Nan 1 pro which he might like? Please suggest. Paed is not giving any satisfactory answers and my family is scolding me when I suggest seeing a new paed. They say he is happy and not crying then he must be getting enough. Don’t know what to do. My lo was 3.13 kg at birth and now at 3 months he is around 5.4 kg. Is this normal? Can I start solids for him atleast? Are there symptoms of reflux?
This does sound like classic refulx Sandy. Do you have the option to get a second or third opinion? Maybe see a Gastroenterologiat directly?
I’m really concerned about my 7month old son. Breastfeeding him has been a big challenge, he feeds properly only when he’s asleep. I have a 6 year old son too, and I breastfed him for 2 years, & I never had a problem with that. So I always believed that’s the easiest way to feed a baby. But now I would say, it isn’t always. My little one won’t even take a bottle or a pacifier, he just prefers to chew them.
I started giving him solids at the age of 4 & 1/2 months. Initially he ate well & we were so happy about it. But then after 2 weeks, he stopped swallowing his food. I was worried. And again after 3 weeks, he ate for 4 days, followed by the same no-swallowing-problem. So this problem has been on & off. Now he’s 7months old & for the past few days, he is back to no swallowing at all. He starts getting angry when I put him in the high chair or, even when he looks at the spoon. I talked to his pediatrician about the problem at his 6month appointment, but he said it’s not a problem at all & that he will learn how to eat very soon. I tried so many different kinds of food, puréed, whole, foods with different texture. But none worked. He’s been gagging too. He also has been having refluxes. I’m extremely worried. I have an appointment with his pediatrician tomorrow. Let’s hope he comes up with a solution. If you could please advise on this, it would be really helpful. I could feel how hard it must’ve been for you.
This sounds unusual to me Priya, I would keep pressing the doctor. If you didn’t get the answer you wanted then I’d get a second opinion or go right to a pediatric GI doctor. Wishing you the best. Let us know how it goes!
Hey Alisha, thanx for the reply. I went to his pediatrician the next day, and he says it’s not a problem at all! He says that, since my baby is gaining weight normally, there’s nothing to be worried about, and that my baby is just going through a food aversion. I don’t know what to do! Should I just wait and have patience, or should I consult a different pediatrician, I’m confused!
Since I can’t see your child Priya my best advice, which almost always right, is to trust your gut instinct! I know this is hard, but if it were me I’d keep getting another opinion or go to the GI directly until I felt like my questions were answered.
Hi Priya , have had success with your little ones feeding. I am going through exactly the same problem. I would really like to here from someone going through the same experience.
Thank you so much for sharing this. Your story matches my experience with both my children. I cried while reading it because I often feel so alone and helpless and it’s so comforting to know others have the same struggle and I’m not imagining these symptoms. Thank you so much for your story!
Thanks so much for sharing that Alexis!
My Son is 4 and a half months old and he doesnt drink formula at all..He hardly drinks 10-12 ounces of milk evryday .He has reflux and milk allergy . He is on his reflux medicine too..The only time i can make him drink is when He is sleeping .,,That too while sleeping he larches 1-1.5 ounces ..I have showed him to my ped and he said he is having food aversion …He asked us either to continue on What We are doing or Dont sleep feed until He ask for it..We tried not to feed him for 2 days and He ddnt ask or cry for milk.,those days He must have had 6 ounces of milk..I Dont know What to do and I feel so worried about his growth..Can you Please advice on What We can do for this ???
Hi Vrinda, I know this is such a tricky spot to be in. I’d consider seeing a pediatric GI, I’d actually strongly suggest that. It sounds like classic reflux and the meds might not be working. I’m assuming that you’re holding him in an upright position as possible, also that you have a wedge under his mattress… those can help a little. In most cases you can bypass the pediatrician and call the GI directly. I hope that helps and push to get an appointment ASAP!
Reading this post and others comments has given me some comfort knowing that I’m not alone!! My little guy is almost 5 months and has been suffering from reflux since about 6 weeks. Every day is a struggle to get him to eat and I can’t ever get more than 14-15oz per day into him. He’s been growing along the third percentile but has started to even fall below that a bit. He’s on Prevacid and biogaia drops but honestly I don’t even know how well the Prevacid works!! He sees the paediatrician a lot but she’s only concerned that he’s gaining weight, even if it’s just a bit…he had heart surgery at 11 days old and I’m told that silent reflux is common in cardiac babies but man oh man it’s tough to deal with- I feel like he’s starving himself and I hate watching him scream in pain and push the bottle away. He has been through enough and I just want him to enjoy eating!! We are back at the ped on Friday and I think I’m going to ask again for him to see a GI specialist…I want to make sure nothing else is going on with him…anyways younpost makes me feel like I’m not alone I really enjoyed reading it 🙂
I’m so glad Jackie- I’d definitely push for the GI, that can be so helpful! Hang in there, this will get better!
I feel your pain. I’m sorry to hear that. It’s definitely difficult when you have to struggle to feed your child. At least you were able to figure out your child has reflux while he’s still a baby. I didn’t know and didn’t start meds until she was over a year old. Always wondered why she hated eating and threw up a lot. My daughter is on Pepcid. Maybe ask the ped about Pepcid? I can’t say it works great as my daughter still complains about her tummy hurting which I’m assuming is reflux but maybe Pepcid will work for your son. I heard it tastes better than some of the other meds. If it continues to be really bad, I hear there’s some surgery that can be done for severe reflux. I’m seriously considering it as nothing is improving.
My 5 yo has spd and can’t eat any solids. I purée all her foods but she doesn’t easily eat them as she has severe acid reflux. She’s on max dose of medication but she complains after every bite that her tummy hurts. She has projectile vomits if she eats too fast or too much or if there’s a slightly solid piece of food that wasn’t puréed properly. Basically anything can trigger vomiting. She’s limited to 8oz meals every 3 hours. I still spoon feed her as her motor skills are poor. We are slowly working on her feeding herself but an 8oz meal will take her 1 1/2 hour to eat. She goes to KG and it’s difficult cuz while all the other kids eat lunch, she eats yogurt everyday. Her immune system is pretty weak so she catches all sorts of sicknesses from school and will have to stay home until she gets better. She’s already missed many school days this year. I’m very worried for her cuz I feel I haven’t met anyone or found anyone online that has had the same issue and now became an adult. I just want hope that things will get better. We’ve gone to several OTs and have had little to no improvement. She’s unable to go down the stairs herself without assistance. She can’t participate in many activities in her class as her anxiety stops her. I don’t know what to do anymore. This isn’t easy. Getting her ready for school in the morning is a hassle as getting her to eat puréed eggs is very difficult in the morning. I’ve masked the eggs with a strawberry sundae syrup but she doesn’t like it. Brushing her hair is also a problem as she says it hurts when I brush her hair. Her hair is right at her ears, not long at all. I have two other kids, ages 3 and 6 months old so giving my 5yo all my attention is very difficult. Has anyone been in a similar situation?
Wow, you are managing so much right now! I can’t imagine what its like managing all of this. I have a couple ideas for addtional resources for you:
1. Would you be open to exploring OT again? Maybe at school? I’m sorry OT hasn’t been helpful in the past, but there are some really incredible OT’s out there that could make a huge difference in her life. It will be free at school and she should qualify.
2. I offer a few free webinars during the year that I think would be really helpful, if you sign up for my mailing list you’ll get access to them and other freebies. You can do that here: http://madmimi.com/signups/188128/join
3. You can find a lot more on my start here page: http://www.yourkidstable.com/start-here
I hope this helps a little and if you have some specific questions let me know. I will tell you though that you aren’t alone at all, you’re doing a wonderful job!!!
Hi! I know this is old, but hoping to get in touch if you could help me with your insight! My (one week away from) 4 month old girl has every horrid symptom of silent reflux and has lately been refusing all food beyond 5 ounces total per day. She is on Day 2 of Nexium currently.
Her weight gain is not enough to be considered ‘thriving’, our pediatrician said, and i had to wait 3 weeks to see the GI for an appointment. In the meantime, while her weight dropped from 25th percentile to 3rd, she also stopped sleeping! Our previously wonderful sleeper who has been known to pull 12 hour nights or close to it is only napping 30 mins about 2-3 times per day and waking up ALL NIGHT long, for about 2 HOURS at a time! She screams and wakes up the second we place her exhausted little body in the crib, elevated with a wedge and all. We are desperately tired (Or rather, I am because my husband refuses to help!) Anyone else go thru this hunger strike and lack of sleep?? No matter how overtired she is, she just wont sleep longer than 30 minutes during the day or 30 minutes-2 hours at a time at night. I’m dying and worried she is too. Thoughts? How do you get them to eat/sleep? Will we ever get reprieve or will sleep training once we get a grip on this help??
Oh Melissa, I haven’t gone through this myself, but this will end. Hopefully the nexium is working now- is it any better?
Hi my son is now 19 months old he had reflux since he was a baby
He was on gentle formula but he never liked his milk.he always refused his bottles & gave us hard time
Doctor never gave him any medicine
He still has reflux
I always hear something is coming up all the way to his throat & he looks really uncomfortable
I tired to give him whole milk he did fine for two weeks
But now again he’s Refusing to take milk
He never took milk more than 3 or 4 ounces
Please help which milk should I give him
He doesn’t eat any solid
Hi Annie, I would highly recommend getting a new doctor, and most insurance companies will allow you to schedule right with a GI doctor. I would call around to see who can get you in the soonest. This really sounds like reflux and making any progress when he is in pain from it will be very difficult. I’d also go to the start here button in the menu bar, that will give you a good guide for how to get started as well.
I will mention this possibility to my pediatrician. My daughter is 2 months today, cries and arches her back when eating, breast milk, gentle formula, or soy formula. She doesn’t ever spit up though. AShe cries all the time from hunger, but won’t eat more than about half an ounce every two hours. She lost seven ounces in two days, and is starting to sleep more. I’m terrified and my pediatrician is running all kinds of tests.
I definitely would!!! Those are all classic signs of reflux! Hoping you get some answers soon!